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My THAL. My Today.
“I feel guilty when the bone pain I experience from beta-thalassemia slows me down on our adventures. I feel like we’re not able to do everything we have planned.
But the important thing is that I’m traveling and, even better, I’m traveling with him. I’m going to continue talking to my doctor about how to plan more trips for us in more exciting new places.”
“I feel guilty when the bone pain I experience from beta-thalassemia slows me down on our adventures. I feel like we’re not able to do everything we have planned.
But the important thing is that I’m traveling and, even better, I’m traveling with him. I’m going to continue talking to my doctor about how to plan more trips for us in more exciting new places.”
“I feel guilty when the bone pain I experience from beta-thalassemia slows me down on our adventures. I feel like we’re not able to do everything we have planned.
But the important thing is that I’m traveling and, even better, I’m traveling with him. I’m going to continue talking to my doctor about how to plan more trips for us in more exciting new places.”
A family story
of resilience
When your loved one is living with beta-thalassemia, you become a team to help fight through it. Hear from Rammeet, an actual beta-thalassemia patient, and her family as they share their story.
Though some of the images used on this website are of actors, the stories featured throughout this website are about or inspired by real-life patients and caregivers living with beta-thalassemia. We are grateful to them for sharing their experiences so that this website can be a useful resource to others in the community.